Billy Connolly diagnosed with Parkinson's: The thing about the disease is that everyone is different

Parkinson's disease has become an essential part of who I am

Matt Eagles
Tuesday 17 September 2013 06:18 EDT
Comments
Billy Connolly opts for a smart moustache and beard combination that matches his long grey hair
Billy Connolly opts for a smart moustache and beard combination that matches his long grey hair (Getty Images)

Your support helps us to tell the story

From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it's investigating the financials of Elon Musk's pro-Trump PAC or producing our latest documentary, 'The A Word', which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.

At such a critical moment in US history, we need reporters on the ground. Your donation allows us to keep sending journalists to speak to both sides of the story.

The Independent is trusted by Americans across the entire political spectrum. And unlike many other quality news outlets, we choose not to lock Americans out of our reporting and analysis with paywalls. We believe quality journalism should be available to everyone, paid for by those who can afford it.

Your support makes all the difference.

I was only eight years old when I became one of the youngest people in Britain to be diagnosed with Parkinson’s disease.

My parents were devastated, but given doctors had previously said they thought it was a brain tumour, in some ways I’m sure it was a relief for them. It’s very strange when you begin to realise something is wrong. In my case, it started in my foot. It was bending in an odd way, but at first it seemed quite innocuous.

I developed a really bad problem with my balance, which is quite a common symptom. It looks like you’re drunk. In a way, I felt a bit like the Tin Man in The Wizard of Oz – I needed medication to help me move. But the drugs kept the Parkinson’s reasonably stable when I was growing up, which was tricky.

I’m 44 now and my main symptoms are muscle rigidity and I twitch quite a lot. But the thing about Parkinson’s is that everyone is different. A lot of people don’t shake.

Billy Connolly is so active on stage and I’m sure this isn’t going to stop him. It’s impossible to predict how it might affect him; he might find that it affects his memory or his voice – it can even affect the size of your writing.

I took voluntary redundancy from my publishing job in April, but I’m now struggling to get work. The word “Parkinson’s” is like a nemesis – you can’t mention it. I’ve been advised to take it off my CV, but it’s an essential part of who I am. The main thing is being positive and doing as much as you can. I don’t see myself as being poorly – it’s something that I deal with every day.

Join our commenting forum

Join thought-provoking conversations, follow other Independent readers and see their replies

Comments

Thank you for registering

Please refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in