Stay up to date with notifications from The Independent

Notifications can be managed in browser preferences.

Government resists calls to compensate hepatitis C victims

Nicholas Timmins,Martin Whitfield
Wednesday 16 November 1994 19:02 EST
Comments

Your support helps us to tell the story

From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it's investigating the financials of Elon Musk's pro-Trump PAC or producing our latest documentary, 'The A Word', which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.

At such a critical moment in US history, we need reporters on the ground. Your donation allows us to keep sending journalists to speak to both sides of the story.

The Independent is trusted by Americans across the entire political spectrum. And unlike many other quality news outlets, we choose not to lock Americans out of our reporting and analysis with paywalls. We believe quality journalism should be available to everyone, paid for by those who can afford it.

Your support makes all the difference.

Health ministers yesterday resisted cross-party calls for compensation for haemophiliacs who have contracted hepatitis C from contaminated blood products, amid controversy over how many people may be infected by the virus.

Estimates of the number of people carrying the virus ranged from 9,000 to more than 500,000. A pioneering study of current intravenous drug users found that 60 per cent had been affected.

The Independent revealed yesterday that 12 British men with haemophilia had died from hepatitis C within the past year. More than 2,000 are believed to have contracted the virus and the figure could be as high as 90 per cent of the 3,122 of haemophiliacs who received the anti-clotting agent Factor VIII before 1986.

Alf Morris, the former Labour Minister for the Disabled, said the principle was exactly the same as that which led to a pounds 42m pay-out in 1990 to 1,200 haemophiliacs who became infected with HIV, the Aids virus, after being given contaminated Factor VIII. But Gerry Malone, the Minister for Health, said: ``It would be wrong to embark on a system of compensation unless negligence has been proved by those who have been treated in some way or another. That is a principle by which we will stand.'' Those infected by HIV had been a special case, suffering social as well as clinical problems. ``Some people were deprived of their employment, they were not able to obtain mortgages, insurance, things like that.''

A further 3,000 non-haemophiliac patients could have received infection through blood transfusions before a screening test was introduced by the National Blood Authority in 1991. Hepatitis C was only identified positively in 1989.

The Haemophilia Society said it had no plans to seek compensation from the Government at the moment. ``It is far too early to say what the needs of people with haemophilia and hepatitis C will be. Our priority is to ensure help and support for people who are unwell as a result of hepatitis C,'' it said.

Heapatitis C, a chronic liver condition, can take up to 20 years to develop and many of those infected show no symptoms for long periods. About 20 per cent are thought to go on to suffer from liver disease.

The British Liver Society warned that up to 500,000 people could be infected and called for government-funded research into the virus. ``The treatment for hepatitis C is not particularly successful and we must have the funds urgently to develop proper treatment regimes,'' Alison Rogers, the society's director, said.

John Marshall, the Conservative MP for Hendon South, one of the leading campaigners for compensation, said what was at stake was a moral, not legal, issue. ``The parallels with the HIV compensation are very strong indeed. What has happened in both is that a treatment designed to improve the quality of life has become a suspended sentence of death. That is not what people receive treatment from the NHS for. No one is arguing that the Government has been negligent, but it has to answer at the bar of public opinion, not the bar of law, and the former is more powerful.''

Drug victims, page 3

Leading article, page 19

Join our commenting forum

Join thought-provoking conversations, follow other Independent readers and see their replies

Comments

Thank you for registering

Please refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in