Thousands of seriously ill NHS patients reportedly denied drugs

 

Ian Johnston
Tuesday 21 January 2014 19:36 EST
Comments

Your support helps us to tell the story

From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it's investigating the financials of Elon Musk's pro-Trump PAC or producing our latest documentary, 'The A Word', which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.

At such a critical moment in US history, we need reporters on the ground. Your donation allows us to keep sending journalists to speak to both sides of the story.

The Independent is trusted by Americans across the entire political spectrum. And unlike many other quality news outlets, we choose not to lock Americans out of our reporting and analysis with paywalls. We believe quality journalism should be available to everyone, paid for by those who can afford it.

Your support makes all the difference.

Thousands of seriously ill patients are reportedly being denied drugs that have been approved for use by the NHS.

Kidney cancer patients are not getting medicines that could extend their lives and people with motor neurone disease and wet, age-related, macular degeneration (AMD) - the most common cause of blindness - were also affected, the Health and Social Care Information Centre body found, according to The Daily Telegraph.

Experts said the findings were “extremely worrying” and spoke of an “endemic postcode lottery” to get access to vital medicine.

The researchers looked at several drugs that had been approved by the National Institute for Health and Care Excellence (Nice).

They found that a third of patients who could have been given treatments like sunitib and pazopanib, both used to extend cancer patients' lives, and riluzole, used for motor neurone disease, did not get them. And more than 12,000 patients did not get injections for AMD.

Andrew Wilson, the Rarer Cancers Foundation's chief executive, said patients were suffering from “an endemic postcode lottery in access to Nice-approved medicines”.

“It is extremely worrying that the NHS does not seem to be making available cancer treatments to all patients who could benefit, even when the drug is approved by Nice,” he said.

Nick Turkentine, chief operating officer of the James Whale Fund for Kidney Cancer, said: “It is really disastrous that patients are still having to battle for a drug which we know can give several extra years of life.”

Duleep Allirajah, head of policy at Macmillan Cancer Support, said: “Patients do not choose which cancer they get. Every patient deserves equal access to treatment no matter who they are, where they are from, or which cancer they have.”

A Department of Health spokesman said NHS organisations had been asked to reveal whether they were using drugs approved by Nice or not.

“Patients have a right to drugs and treatments that have been approved by Nice and we expect the NHS to provide them if they are needed,” he said.

Join our commenting forum

Join thought-provoking conversations, follow other Independent readers and see their replies

Comments

Thank you for registering

Please refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in